Wednesday, was pretty good - for the most part. His appetite was nearly non-existent but I was able to force a few pieces of shrimp into him. A few TV / remote "moments" but they were easily fixed.
He had chemo on Thursday and then late on Thursday, I got a call from Dr. F's nurse saying that Dr. F didn't like his magnesium level and he was scheduled for a three hour magnesium on Friday. He was good with it and did well.
It's now Tuesday, nearly a week later, and I see SO much degeneration of his memory. He's convinced that there are two Dallases - this one and an old one. This has been going on for quite some time but the last week has been very disheartening. He's been going to bed around 8:30 p.m. and asks for a "cuddle" before I go to my end of the house. So I lay down next to him for a few minutes and he seems calmer.
Last night, I woke up around 1:30 a.m. worrying about him and unable to fall back to sleep. Also, there were a lot of sneezes, so I took a Benadryl around 3:00 a.m. and picked up my iPad. In a few minutes, he was walking into my room telling me he just needed to talk for a few minutes. We did - I tried to explain we're in Dallas and this is our home. He was again calmer and went back to bed.
Now, it's around 10:00 a.m. and I just spent the last hour trying to get him to explain to me HIS REALITY. He's convinced not only do two Dallases exist, but two homes. He wanted to ask me to pack a few things - not too much - and drive back to his house in the Other Dallas. He struggles to find words and goes off track. The entire time I was sitting in the chair in his home office, I was praying for God's help with this.
We see Dr. F on Friday and I'm going to ask her if the Erbitux is doing this to his memory. Also, we see Dr. H on the 19th and I'll discuss this with her as well. Last summer, Dr. H asked if we wanted her to prescribe Aricept for his memory issues and quickly added that it wouldn't work. All the research I've been doing confirms that NO drug from Big Pharma does anything at all to help with memory issues - just makes Big Pharma richer and bigger.
On March 1, Awakening from Alzheimer's is having another 12 day series of new interviews and I'll be watching every minute. I truly believe there are good doctors out there who want to put an end to this horrific disease.
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