It's been a week since my last post. That little glimmer of hope I saw seems to have gone by the wayside.
Jay had labs on Tuesday and Friday. On both days, his magnesium was low so he got 4 gms of magnesium each day which is a two hour infusion. He always takes the infusions so well - he's definitely my hero in that regard. He'll have labs again this Tuesday, the 24th, and if magnesium is low, another two hour infusion. We don't see Dr. Flippo until May 1 after labs.
His cognition is really fragmented. He's convinced we have two houses: one in Dallas and one in the Real Dallas. It's just impossible for me to convince him otherwise.
All day yesterday, he was extremely confused and worried and at points, terrified. Nothing would calm him down. I gave him a Sam-E tablet three times yesterday hoping it would calm him. On the news yesterday, there was a "story" about the fires in California late last year noting that insurance coverage would not cover the rebuilding of the homes lost in the fires. For the rest of the evening, he was convinced we were going to go to jail because of insurance fraud, saying we have two houses covered by insurance illegally. I know he absorbs what's on television so no more Sopranos.
When we last saw Dr. Flippo, he told her he had no guns in the house; last evening, he told me he does have a gun in the house. I've never seen anything more than a BB gun in this house, but he got my attention. I think we'll discuss it if his head clears up today.
This morning at about 6 o'clock, he came into my room with his flashlight shining in my face to see if I was awake - well, that'll do it! ;0) He crawled into bed with me but neither of us was able to fall back to sleep.
Right now, he's in his office, eating orange and banana salad while watching the Sunday morning news shows. The gal that plays Abby on NCIS is going to be on and he loves her. Surprisingly, he remembered she was going to be on from the promo last week.
Before starting the chemo [after the radiation nearly two years ago], his cognition was not good, but the chemo has really exacerbated his condition. I, of course, am feeling guilty because I encouraged him to do it, believing Dr. Flippo when she said she wanted him to have a "quality of life." I'm surely not blaming her - I should have done my homework. But, people need to know how horrible it is to have a loved one having to go through this. Dementia is horrible. I hope and pray I can stay healthy and take care of him at home.
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