June 1, 2018 - Hashimoto's Encephalopathy

Welcome to June in Dallas! We've had some abnormally high temperatures lately and the weather forecast is for more of the same. Methinks it's going to be a long hot summer.  However, that won't be a huge problem because last Friday we had the entire HVAC system replaced.  I was completely in awe of Jay's ability to negotiate with the salesman. He would not have been able to do that a month ago. When we saw Dr. Haq two weeks ago she said that his diagnosis of Moderate Cognitive Impairment could very have been incorrect.  She also told us that his antibodies were "off the charts."  Normal is 35 and his were over 800.  I will be forever grateful to Dr. Nooradeen and Dr. Tang for their tenacity in getting to the bottom of Jay's paranoia and psychosis.

This morning Jay was so much more enthusiastic about life and I'm over the moon about it. He talked about our car trip to Carmel but I think we should put that off for a little while due to the huge expense of the HVAC system and then two days later the replacement of our water heater. Hopefully, June will be a kinder, gentler month financially.

It's almost hard to believe that on May 1, Jay was admitted to the hospital and on suicide watch for two days.  I thought our life was pretty much over. But God, in His glorious goodness, had other plans.

We've not heard from Dr. Flippo since he was discharged from the hospital but I'm sure she'll want a PET scan this month.  And, of course, we need to deal with his port - either get it flushed once a month or have it removed, as I doubt there will be chemo in his life ever again.  That's not to say the chemo caused the Hashimoto's Encephalopathy but we just don't want to take the chance.

I've been walking two to three miles most days and have gone out to lunch with friends and even to dinner with another friend.  I'm not fearful of leaving him alone anymore.  

Of course, HE is an autoimmune condition and there might very well be setbacks but all in all, his mind is clear and that's a Very Good Thing!