It's finally happened - there's hope that Jay's horrible terror might be easing up. What started out as a pesky last couple of days, ended up sort of on the up side! His prescription for Alprazolam was running out and on Tuesday I called Walmart to order a refill. I went to get it on Thursday as that was the last pill. Actually, I went twice, and on the second time the pharmacist herself told me it would be ready "first thing" Friday morning. I waited until about noon and went over to get it and was told there are NO REFILLS. I actually cursed out loud as I was SO frustrated. I called Dr. Haq's office and got the message that the office was closed from noon to one. So I got on the BSW portal and sent her a message. She called just after one and I explained as I had in the message what was going on. She was VERY apologetic and had a fax sent to Walmart with five refills while we were talking. She said "his dementia is getting worse" and that hit me hard - Jay too since I had her on speaker. She agreed that radiation and chemo has a negative cognitive affect. She agreed that since we'd not heard from Dr. Flippo about the results of the MRI, that no stroke had occurred. She told me to keep her up to date and I told her I would.
So, we went to an early dinner at Outback and while neither one of us finished our meal, dinner will be quick and easy tonight - warm up the leftovers!
While watching TV last night, Jay was overwhelmed with fear and wanted to go "home to Dallas" and I just could not convince him we were home. He said he trusted me but just couldn't get his head around that fact.
This morning when I went in to take him his first pill, he told me he was "terrified" and wanted to go home. I talked him through it and when I told him this IS our home and that all his things are here, he stopped shaking - yes, he literally shakes with fear - whether real or imagined his fear is there. It only took me about five minutes to get him calmed down and he said it made sense that this is home. Whew! A tiny ray of hope!
So when I was getting his pills together for the week, I added back the MCT oil capsule which I'd taken out as it interfered with what little appetite he had. So with MCT, NeuroMag and Lion's Mane, I think [and hope and pray] that some of this horribleness that is associated with his cognitive impairment might dissipate.
He's taken a shower already and is dressed and ready for the day. I might take him to Sam's Club later as he loves their hot dogs! How's that for health food?!?!
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