Saturday, April 7, 2018

April 7, 2018

Saturday morning and I'm sipping my first - and probably only - cup of coffee.  A little peace and quiet for the moment.

Because of scheduling at Texas Oncology, he didn't have infusion on Friday. It's TO's policy NOT to schedule a patient for infusion when their doctor isn't in the office.  Dr. F was out on Friday so we'll be going to TO on Monday for labs, Dr. F and infusion. She'll be getting an earful as follows.

Friday was a very rough day. The dementia really kicked in.  He took two showers because he couldn't remember having taken one.  Naturally, the pile of his laundry is growing exponentially. But that's small potatoes in the overall scheme of things.  After his first shower, he tried to sit on his bed and missed it completely and fell on the floor. He's 6'5" and weighs just over 200 pounds so I can't even help him. Thankfully, he didn't hit the metal trunk that was just inches from his head.

We watched NCIS: New Orleans Thursday evening and he was completely convinced we were IN New Orleans and was worried about "packing up" all the stuff and getting it back to Dallas. Last evening, we watched an episode of Fixer Upper [one of his favorites] and he was convinced that Tim Tebow and the two kids in wheelchairs were coming to live with us.

This morning, he tried to sit in our TV double recliner and he fell again - missed it completely. He really is "my toddler" and I have to check what he wears.  Today, he had two pair of undershorts on; he tried to put another pair of socks on over the ones he already had on; he was able to put one shoe on with no trouble but he kept using the shoe horn to put the other shoe on when the other shoe wasn't even near his foot!

I know it sounds amusing, but believe me, it is NOT.  My heart hurts for him because of what's going on inside his head. I know he's slightly aware of his "limitations" and he fights to prove to me that he's in complete control.

I think this might be a very long day as it's barely 9:00 am!


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