Well, it's been two weeks since Jay was discharged from Baylor. We saw Dr. Tang, the neurologist, yesterday and she was quite pleased with his progress. He's pretty much a New Man! She's decreasing the amount of steroids from 60 mg per day to 40 mg per day. We see her again on June 22 and if he's still with those horrible symptoms, she'll probably decrease him down to 20 mg per day.
He still has cognitive issues but they're mild. No paranoia or psychosis whatsoever. I'll, of course, be watching him like a hawk for any of those signs and will report to Dr. Tang immediately. It was so horrible for him having to deal with all that crapola.
We see Dr. Haq tomorrow. Still haven't seen nor heard from Dr. Flippo. I'm going to call and ask about having his port removed. That should get her attention.
I don't know if we're going to take that trip to Carmel - he's still fearful of being far away from his doctors. I'm not going to push him on it as I'll save PUSHING for a possible trip to Vermont in early November to see my family! I'll pick my battles!
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