Naturally, some days are better than others. For the most part, Jay doesn't seem to stress about his cancer. His major concerns are: how did the cars get here? Where are you going to sleep tonight? We've stayed here before haven't we? These are questions that he asks nearly every evening. Some times, it just takes a few words to get him straight, but on other occasions, it's really difficult to get him to accept reality.
We got married on May 10, 2017 in Palm Springs, California after over 31 years of being together. When he's asked when we got married, he always says Wednesday - which is correct. However, he never gets the month, date or year correct. I'm thrilled that he remembers Wednesday.
When he worked for Stereo East, he was a crackerjack with audio video and had the best equipment and knew how to use it blindfolded. Now, he can't manage to turn on or off the TV. While I've typed these three short paragraphs, he's come into my sitting room to ask me how to turn on or off the TV TWO times! We're now on the third remote control in three months as he thinks another will be better. A lovely young man from Spectrum, our provider, came out on Saturday as we'd been told over the phone that it was the cable box that needed to be replaced. He discovered the cable box was just fine but that the remote control was obsolete. Now he's having to learn to use yet another remote!
Sometimes I get so frustrated but try SO very hard not to show it as I just don't want to cause him stress or anxiety. It's so painful to see him struggle with things that a normal person doesn't even think about. I don't know how to deal with these issues but am doing the best I can.
His appetite has always been poor but now, it's ridiculous. Candy, cookies, sugar on Cheerios! Sugar feeds cancer and he knows that but it's an addiction. And really, at this stage in his life, should I really try to monitor everything he puts in his mouth? I don't think I mentioned it, but he's 77 years old.
There was a web series in November/December of 2017 called Awakening from Alzheimers which I diligently watched. There were 12 or 13 episodes interviewing Dr. Mary Newport, Dr. Dale Bredesen, Dr. David Perlmutter and others diligently working in the field. There are several supplements that were recommended. He'd been taking NeuroMag for over two years and I think it's made some improvement. After he'd taken it for a month or two, I stopped giving it to him and within a week, I could see the difference. He's back on it and also takes Lion's Mane as well. Those are the two main supplements that he takes. I was giving him MCT tablets but after a few weeks, I stopped as his appetite didn't need to be suppressed anymore than it already was. I put MCT oil in my first cup [only cup these days] of coffee each morning and if I have tea, it goes in there as well.
I don't think there's much of a flow to this post but it's late and I'm tired and I might tweak it tomorrow. But the Eagles won the Super Bowl and I'm happy. Jay has a man crush on Tom Brady so he's not too thrilled.
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